Infection with Human Immunodeficiency Virus (HIV), thankfully, is no longer an inevitable, terrifying death sentence. With the advent of effective antiretroviral therapy, HIV has been turned into a chronic illness that can be managed in the context of a life expectancy that is pretty close to normal. Living longer, however, is not the same as living in good health with a good quality of life: The lives of the growing population of older persons living with HIV are disproportionately affected by a serious number of physical, mental and social challenges.
Project U-TOPIA set the first step towards the empowerment of older adults living with HIV. The project has been designed to develop, through co-creation and explorative market analysis, sustainable concept(s) for supportive technology that match the needs of older persons living with HIV to manage and improve their quality of life. Based on the collective results next steps for further development and commercialisation of assisting solutions were planed.
End user involvement is a very important aspect in the area of Active and Assisted Living (AAL). The consortium included four end user group organisations in three countries involving primary (older HIV patients) and secondary end users (HIV physicians, social workers, HIV nurses, relatives, formal carers, general practitioners). With the expertise of co-creation leader Waag, Institute for Art, Science & Technology, we adapted and used a co-creation methodology to achieve ICT concepts that meet the needs and aspirations of older persons living with HIV once implemented.
To enable shared learnings about both the chosen format, and the toolkit used in our AAL project U-TOPIA we provide a document about the methodology chosen and adapted for our project. It includes timeline and planning of co-creation sessions as well as individual (templates for) exercises and energisers that have been used in these sessions.
D2.1 Format and workplan for co-creation (format
D2.2 Needs analysis, navigation co-creation toolkit &
concepts for sustainable supportive technology on selfmanagement
Download: U-TOPIA.D2.1-D2.2_with-Annexes (PDF, 4MB)